CHANGE. EMPOWER. CONNECT.

Challenge

Ask almost anyone about GVHD, and their answer will likely be that they have never heard of it. That lack of awareness presents a fundamental problem for transplant patients who are faced with GVHD. Where do they turn for education, resources, and to feel less alone? Where can they find help that was tailor-made for them?

Solution

Enter the GVHD Alliance—1 organization dedicated to improving the lives of those living with GVHD and their families. The Alliance includes 5 advocacy leaders who were already committed to its mission: the American Society for Transplantation and Cellular Therapy (ASTCT), Be The Match, Blood & Marrow Transplant Information Network (BMT InfoNet), the Meredith A. Cowden Foundation, and the National Bone Marrow Transplant Link (nbmtLINK). Joining forces allows for more powerful efforts than ever before—efforts that will support anyone impacted by GVHD and increase awareness of the condition among the general public.

MEETING THE NEEDS

Thanks to collective efforts, awareness of GVHD—and the fact that new and much-needed support is now available—is already growing.

February 17, 2023 marked the first-ever GVHD Day. The event drove more than 1000 downloads of educational tools and resources on GVHDAlliance.org and a 200% increase in online conversations, and inspired nearly 300 people to gather for the GVHD Alliance's inaugural reception at the 2023 Tandem meetings of ASTCT and CIBMTR.

It's safe to say that people are talking—and that's the first step toward creating change.